Understanding Diagnosis and Treatment
There is so much information out there it can be overwhelming. Below we have listed various charities in categories to help you find the most relevant information to you:
Blood Cancer UK – Formerly known as Bloodwise, they provide practical and emotional help, online community forum and peer groups, buddy system and information days.
Lymphoma Action – Provide online support groups, ‘buddy’ service, health and wellbeing resources and self-management workshops for 18 to 35-year-olds.
The Brain Tumour Charity – Emotional and practical support, information and education resources: free counselling for patients and families, expert benefits and money advice. Facebook peer groups, and family days.
Bone Cancer – Support and information on bone cancer
Sarcoma UK – Support line, support groups, information, resources and emotional and practical online support.
Target Ovarian Cancer – Support line, events, local support and online community.
Testicular Cancer – Baggy Trousers UK – Provide financial and peer support to men who have been affected by testicular cancer.
Bone marrow information – Anthony Nolan – Matches blood stem cell and bone marrow donors to people with blood cancer and blood disorders. Also provides support to patients and conducts research into bone marrow treatments.
TYA Childhood Eye Cancer Trust – Lifelong support for anyone affected by retinoblastoma; support workers, members’ day, weekend events for teenage members, peer support and Facebook group.
Young Lives vs Cancer helps children and young people (0-25) and their families navigate the financial, emotional, and practical challenges of cancer. Key support includes specialist social workers, free “Homes from Home” near hospitals, financial grants for travel and expenses, and welfare advice on benefits.
The Tom Bowdidge Youth Cancer Foundation provides emotional, financial and practical support for teenagers and young adults with cancer. They also fund research into cancers affecting teenagers.
Children with Cancer UK webpage has a Cancer charity finder as well as offering help with grants, accommodation, medical equipment whilst raising awareness and funding for research for those aged 0-25 years.
CCLG offered trusted content for TYA patients on topics such as managing relationships, fertility, nutrition and emotional support.
Macmillan Cancer Support Information and resources, support line, email and online chat; money and work advice, counselling, emotional support, online community, ‘buddy’ system and beauty advisor.
Maggie’s Free expert care and support throughout the UK and online. Financial support, practical advice, peer support, courses and workshops.
Lennox Chldren’s Cancer Fund Financial, practical, and emotional support; respite breaks, local community support group and 24 hour family support contact (0-18 years).
JTV Cancer Support is a project for teenagers and young adults who have been affected by cancer. It is funded by the Teenage Cancer Trust. Through media, it helps young people express their feelings and make some sense of their personal journeys from diagnosis onwards
Shine Cancer Support for those aged 20-50yrs with a current or previous cancer diagnosis. Provide peer-support and practical advice for adults with cancer diagnosis
Teens Unite provide peer support, free activities and short breaks, online learning, games evening and peer support for 13 to 24-year-olds, in person and online.
Teenage Cancer Trust Emotional and practical support; events for young people aged 13 to 24, online community and social network for young people.
Teenage Young Adult Research – A learning resource with age-appropriate resources to help inform teenagers and young adults about clinical trials, biobanking and genomics.
Working With Cancer Coaching, career advice, webinar and online workshops.
Teens Unite Tailored activity, events and residential stays to support young people aged 13-24years to live positively with cancer and navigate the years that follow.
Ellen MacArthur Cancer Trust Free sailing and outdoor adventures for up to 24 year olds. They also provide wellebing sessions, podcasta and sibling support for those aged 13-17 years.
Flynne’s Barn Provide a free 3 night residential trips for 18-25 year olds in the Lake District on a farm bringing together young people, as well ss providing counselling and family support serices.
Youth Cancer Trust Online support and free therapeutic wellbeing holidays; online groups for peers aged 14 to 30.
Henry Allen Support and advice, financial grants, wellness counsellor, care packs, respite, social events, treats and therapy dogs (0-18 years).
Dreams Come True makes dreams come true for seriously and terminally ill children aged 5-18 years across the UK.
Make a Wish Foundation grants wishes for children aged 3-17 years with life-threatening illnesses.
Rays of Sunshine grants wishes for seriously ill children in the UK aged 3-18 years. Can grant hospital ward wishes and organise outings and large scale events.
Lennox Chldren’s Cancer Fund Financial, practical, and emotional support; respite breaks, local community support group and 24 hour family support contact (0-18 years).
Ella Dawson Foundation supports those aged 18-30 years with a diagnosis and for up to 2 years at the end of treatment. They provide counselling, mental health support, exercise and nutritino programes, away days, counselling, yoga and wellbeing breaks for parents, carers and siblings.
Project Youth Cancer provide free counselling through treatment and beyond
Henry Allen support those aged 0-18 years and their families to access counselling and emotional support to manage anxiety and build resilience.
Mind over Cancer supports mental health of 0-29 year olds and their families. Provide counselling & support programmes and a drop-in sessions supporting the young people, their parents and siblings.
The Joshua Tree provide counselling and therapeutic activities to support the whole family. For children and young people 0-24 years.
Rainbows Trust are great at offering practical and emotional support for the whole family, such as driving to appointments, activities for siblings and even support for grandparents.
Sebastian actions Trust also offers similar support including emotional, social and practical help, outreach care and counselling.
OUTpatients Online peer support for anyone who identifies as part of the queer spectrum, and online peer support meetings for partners and carers.
Move Against Cancer Keep moving when living with or beyond cancer. Provide an 8-week online programme, 5k your way community programme, educational resources, workshops and podcasts
Trekstock Exercise programme, specialist health support, yoga, coaching and community for 20- to 30-year-olds, online or in person.
The Joshua Tree provide 1:1 personal training and bootcamp-style group sessions for teens and adults to rebuilding strength post-treatment or for parents looking to focus on their own health, focusing on safe, supportive, and individually adapted support.
Look Good Feel Better offer Virtual workshops on skin care and make up, wigs, head coverings, body image, wardrobe styling, nail care, skincare and grooming techniques to help young people and adults with cancer cope with the physical and emotional impact of treatment.
Little Princess Trust provides wigs and research grants for those aged 0-24 years.
Activ8 Eat well move more, an 8 week healthy living programme to help you build better habits.
Child Bereavement UK helps families to rebuild their lives when dealing with loss and grief of losing a child or young person (0-25 years).
Winstons Wish is a charity that offers free, accessible online grief support to children and young people (0-25 years) across the UK who are bereaved or facing the death of someone important as well as support for parents, carers or family members supporting a grieving child or young person.
Fertility Network UK Support line, fertility group meetings and events, health and wellbeing series, online community and peer to peer support.
Daisy Network supporting women with premature ovarian insufficiency.
HIMfertility supporting men experiencing male fertility issues.
Menopause and Cancer supporting everyone affected by menopause after cancer providing resources and community support sessions.
Menopause Matters Information about menopause and treatment options.
You and your Hormones education resource on hormones and hormone related conditions.
The Pituitary Foundation providing information and support for pituitary conditions.
Oxford University Hospitals (OUH) – There is more information about the TYA team and provision at OUH, links to charity resources, as well as information on the late effects service. Teenage and Young Adult Cancer MDT – Cancer Services – Oxford University Hospitals There is also a link to some TYA events and a young adults story. Teenage and Young Adult (TYA) Cancer Services – OUH gallery of events
University Hospital Southampton (UHS) – There are specific patient information leaflets available on their website with more information about the team, the TYA unit and the services provided at UHS. Teenage and young adult cancer care – University Hospital Southampton