Understanding Diagnosis and Treatment
There is so much information out there it can be overwhelming, the CCLG website offers trusted tailored content on specific cancers, treatment protocols, side effects and supportive information and booklets on managing school, nutrition, and emotional support during treatment and much more.
Blood Cancer UK – Formerly known as Bloodwise, they provide practical and emotional help, online community forum and peer groups, buddy system and information days.
The Brain Tumour Charity – Emotional and practical support, information and education resources: free counselling for patients and families, expert benefits and money advice. Facebook peer groups, and family days.
Bone Cancer – Support and information on bone cancer
Sarcoma UK – Support line, support groups, information, resources and emotional and practical online support.
Bone marrow information – Anthony Nolan – Matches blood stem cell and bone marrow donors to people with blood cancer and blood disorders. Also provides support to patients and conducts research into bone marrow treatments.
Young Lives vs Cancer helps children and young people (0-25) and their families navigate the financial, emotional, and practical challenges of cancer. Key support includes specialist social workers, free “Homes from Home” near hospitals, financial grants for travel and expenses, and welfare advice on benefits.
Henry Allen Trust offers financial grants to support families during hospital treatment with things like transportation and accommodation. They also offer things like care packs, Toy packs, Arts and Crafts packs and even Food packs for unexpected hospital stays.
Family Fund give grants to families on a low income for items they may not otherwise be able to afford. For example, family breaks, digital equipment, white goods, clothing, bedding, furniture and play equipment as well as offering advice and workshops.
The Isabella Foundation supports families in a range of ways from supermarket vouchers to help keep food on the table, to bespoke dry suits that allow children with central lines to safely enjoy baths and water play, to restorative stays at ‘Isabel’s Retreat’.
Children with Cancer UK webpage has a Cancer charity finder as well as offering help with grants, accommodation, medical equipment whilst raising awareness and funding for research.
Together for Short Lives support for families who have a child with a life-limiting illness including a helpline, financial support as well as legal advice service.
Rainbows Trust are great at offering practical and emotional support for the whole family, such as driving to appointments, activities for siblings and even support for grandparents.
Sebastian actions Trust also offers similar support including emotional, social and practical help, outreach care and counselling.
The Oliver Curd Trust provide Caravan Holidays in St Leonards on Sea & Battle for children living with life limiting or threatening conditions.
Henry Allen support families to create ‘Treats and Wishes’ – whether it’s being a zookeeper, meeting their child’s hero or some time away as a family, they aim to give families the opportunity to create some treasured memories.
Dreams Come True makes dreams come true for seriously and terminally ill children across the UK.
Make a Wish Foundation grants wishes for children aged 3-17 years with life-threatening illnesses.
Rays of Sunshine grants wishes for seriously ill children in the UK aged 3-18 years. Can grant hospital ward wishes and organise outings and large-scale events.
Henry Allen are also able to support families to access counselling and emotional support to manage anxiety and build resilience.
The Joshua Tree provide counselling and therapeutic activities to support the whole family.
Danny Green Fund help families access various therapies such as neuro-physiotherapy, hydrotherapy, horse-riding therapy or a piece of multi-sensory equipment to help children recover from disabilities caused by Posterior Fossa Syndrome.
The Joshua Tree provide 1:1 personal training and bootcamp-style group sessions for teens and adults to rebuilding strength post-treatment or for parents looking to focus on their own health, focusing on safe, supportive, and individually adapted support.
Look Good Feel Better offer Virtual workshops on Skin care & make up, wigs, head coverings, body image, wardrobe styling, nail care, skincare and grooming techniques to help young people and adults with cancer cope with the physical and emotional impact of treatment.
Child Bereavement UK helps families rebuild their lives when dealing with loss and grief of losing a child.
Winstons Wish is a charity that offers free, accessible online grief support to children and young people (aged 25 or under) across the UK who are bereaved or facing the death of someone important as well as support for parents, carers or family members supporting a grieving child or young person.
Oxford University Hospitals (OUH) – There is more information about the Children’s team and how to contact them, the provision at Oxford, as well as information on the Aftercare service and signposting to supportive charities.
University Hospital Southampton (UHS) – There is information for families on about the team and how to contact them, the Piam Brown Ward and the services provided at UHS.